Fed up with what she considered inadequate care, Ellen Goode, 43, moved her mother, Frances Livermore, 87, out of a nursing home and into her Chicago living room. Frances suffered from paralysis due to Parkinson's disease and mini-strokes, diabetes and numerous other ailments, which required 24-hour monitoring.
While Ellen says she is happy with the decision to care for Frances, it did not come easily. Caregivers often deal with physical and emotional issues due to the overwhelming nature of the job, from which Ellen was not immune. Her long-term domestic partnership dissolved, and Ellen’s own health deteriorated due to stress, lack of sleep and poor nutrition.
These photographs follow Ellen as she nurses Frances through the last eleven months of her life. They were originally published through the Chicago News Cooperative in 2012. The story also appeared here.